Five Ways To Cultivate Partnerships

/in /by

Stay Connected
It is not always easy to keep in touch with parents and professionals who work in hearing health and aural habilitation. Perhaps you occasionally meet at school, at a weekly therapy session, or in your community. It is important to make time; for any relationship to remain strong, it needs to be cultivated and nourished. Schedule play dates to meet with other parents. Stay connected with your teachers and audiologists. Attend parent gatherings, school events, and professional workshops.

Never underestimate the power of connections and cultivating relationships with others in the journey to raise your child with hearing loss. Staying connecting is vital if you want to maintain and build knowledge in auditory based practice, grow deeper understanding of the support you can give your child in school, and cultivate partnerships that provide informational, relational and social supports.

Collaborate with Professionals
An important part of any successful relationship is collaboration. Every professional has their own unique skill set, and you too have unique skills and strengths. Your parenting skills evolve as you raise your child. You may be struggling at home, with your child’s school or with your child in a particular way. Collaboration allows you to engage in conversations with your teachers and others that can expand your knowledge. The goal is to help you achieve success as a team.

Working independently is fine, and seeking resource online or in books is great. Collaboration might yield broader results. A great example of this is when working on homework assignment with your child. Perhaps you want to engage with your child in this assignment, but the child is having problems and you have no idea what to do about it. The problem (such as reading comprehension or a math problem) is not something you understand well enough to guide your child through. Broaden your scope of the situation; how might you partner with your teacher to help? What objective questions can you ask your child’s teacher to help your child solve the problem? Would asking multiple professionals help you gain a greater depth of understanding in how to work with your child? Collaboration works well when you trust each other and work toward a common goal.

Don’t Compete
People come from different backgrounds and experiences. A child’s hearing loss might be misinterpreted, challenged, or downplayed. You have the right to express expectations of your child without being competitive or adversarial. An important lesson in building positive and strong relationships is to avoid competing and arguing. Since you know your child best, initiate a conversation that highlights your child’s potential first. Don’t focus your belief on what you feel is attainable. Instead, be persistent and courteous in your attempt at finding a common communication, academic, or social/emotional goal. Be open-minded, state your intention, and be non-judgmental. Envision standing in the shoes of others to gain their perspective; try to see the other viewpoint with reason, interest and understanding. At times, you might feel the need to walk away to evaluate your emotional response. If needed, take time to think about important points you want to make before engaging in a new conversation.

Be Supportive
Just like any another relationship, a strong rapport with either a parent or professional needs to feel supportive. There may be times you get support and other times a parent or professional need your guidance. Ask how you can help them understand a situation, a concern, or ask how they came to a decision. Be empathetic and authentic. Perhaps you offer a suggestion, pose a question, or tell a personal story that helps. Conversely, when you get support from someone, express your gratitude. A good relationship with either a professional or parent is not only powerful but can be long lasting and highly supportive emotionally and socially.

Motivate Each Other
There comes a time in life where you hit a plateau and you’re not quite sure what your next move should be. This is when a strong relationship is needed. Not only can an ally help motivate you in your quest for success, but he/she can be a great source of advice or knowledge on parenting, family matters, and auditory based practice.

Close relationships help you both explore your journey as you parent children through ages and stages of development. As your child matures, so do your decision-making skills and your perspective. When you are unsure about a situation at home in which to help your child, seek out the advice of another parent and/or professional. They may help motivate you and clarify your next step. At other moments, parents and/or professionals may provide acknowledgement of what you may already know.

Keep in mind you may be modeling a good relationship, and your communications and success may help inspire other parents. Networking with others is important to learn about successful mainstream experiences for children. Dive deep into conversations that provide a source of motivation and guidance as you raise a child in mainstream school. The relationship goes both ways really; your vested interest in another’s success may also help them push you further in achieving your own goals for your child.

Information from this article should be cited/referenced as: “Partners for A Greater Voice, Inc. Content derived from Essential Programs to Coach and Empower (2016). Ipswich, Massachusetts U.S.A. www.greatervoice.com”

Share

Time Out Parents! Take 30 Minutes for Self Care!

/in /by

In a demanding world of parenting children with disabilities, self-care often takes a back seat. There exists an evolving sun and moon around the home, where unfaltering devotion and love drives parents to complete a ‘to do’ list. The fact that self-care falls short in a daily agenda is not surprising. In 2006, a report by Murphy, Christian, Caplin, and Young states caregivers overlook their own health due to several barriers. This includes lack of time, respite hours, and qualified alternative care providers[1].

There are no boundaries in the care parents give their children, and yet the care parents give themselves often falls short or not at all. A 2016 Partners for A Greater Voice (PGV) parent survey found that 44% of caregivers of children with hearing disabilities had no time to care for themselves. The survey also found that over 41% of parents have high degrees or extremely high degrees of stress in their lives when caring for their children. Another 35% said they have moderate degrees of stress[2]. Parents may exert boundless energy in search of ways to support their children’s individual physical, emotional, and cognitive needs. The crest of parenting attention is often reserved for the family instead of the parent.

As a parent of a child with disability, can you add self-care to your ‘to do’ list? Is 15 or 30 minutes of ‘time out’ each day attainable for you? I would have to argue an undeniable ’yes’! Your mind, body, and heart matter when it comes to effective parenting. These three parts of you need nurturing to more successfully (and happily) engage and attend to the needs of your child and family. Exercise, meditation, yoga, sleep, and good eating habits are some of the activities to consider. They help reduce stress and blood pressure, and can also improve productivity. In the survey PGV completed in 2016, reading a book and talking with a friend are other options parents choose for self-care. Find time to do something you love!

For many parents, however, we tell ourselves that we cannot spare that precious time. I know this well, since I have raised two children with hearing loss, retinitis pigmentosa, learning, and attentional needs. I am there, running in all directions, tripping over toys on the floor, trying not to burn a pot of boiling pasta, while thinking about the upcoming special education meeting, scheduling medical appointments, and worrying where the money will come from to buy assistive technologies. My mind races with responsibilities to support my children’s learning, manage our home, cope with healthcare, and prepare myself for work. Dare I say my body aches? Dare I say sleep is restless? Naps? Forget about it! Our minds are likely stuck in overdrive because the ‘to do’ list for our children is long and often controls our lives. Needs of family, health, education, and disability care can hold us prisoner.

Parenting demands a certain emotional preparedness to ensure children are ready for their futures and their ever-evolving development. This is one reason why I became involved with a parent network. I connect with like-minded parents of children with disabilities because they support me emotionally. I relish in the joy of listening, learning, and growing with others that share in the journey of my children’s education, medical care, and accommodations. I relish in the stories that portray challenges and how parents overcome them. Their mainstream or hospital experiences can easily be mine, and sometimes they are. We cry together and prop each other up. Yet, parents give me hope and the emotional support that is essential in how I learn to cope. Self-care is a coping strategy. Learning to cope in healthy ways must include self-compassion that prepares me for the best possible parenting.

Enter the value of other social time to nurture my mind and learning. Thank goodness for audiologists, teachers, doctors, and even the cashier at the check-out counter! Adult conversations give me a breath of fresh air from the constant language I delve out to my kids. The social supports I encounter lighten my burden of grief that causes uncertainty or confusion about my children’s needs. The breadth of knowledge of practitioners gives me confidence! Their experiences and perspectives have helped me to help my children. I am happier, healthier, and have a clear mind about the choices I make.

Caring for my body and mind are also important. Yoga, walks, and meditation can help to release a stressed and tense body, calm my chattering mind, and ground me with clear intentions. Research shows how meditation reduces stress, improves productivity, and stimulates mindfulness. Whether I am waiting for the bus, cleaning dishes, or shopping for groceries, I remind myself that these are opportunities to enjoy. To be mindfully aware of them slows the incessant thoughts and worry about the future. I can enjoy the sensory experiences of color, design, smells, and sounds wherever I am. These mindful moments ground me in the present, and it makes chores more enjoyable.

There are also simple activities I weave throughout a day: taking several long breaths while at the sink, closing eyes to absorb the sun’s rays on my face, rolling my shoulders. Below are other rituals that work for me. What works for you?

  • Every day, I slowly emerge from the warmth of my bed and do these two things: I thank God for a new day and say a prayer of appreciation. I practice mindfulness as I prepare tea or coffee, empty the dishwasher, and fold clothes.
  • I meditate for 10 or 15 minutes a few times each week. It begins by feeling my breath move in and out the nose. I notice how inhales inflate my body and how exhales empty and relax my body. I scan the tension in my body and relax my face, legs, arms, and shoulders. I observe my thoughts that come and go from my scattered and busy mind, and settle into stillness until I see them more clearly.
  • I get outside with nature! Sometimes I bring nature into my house (flowers, leaves, pretty rocks). I listen to birds. I smell the splendor of grasses and trees. I absorb nature’s boundless energy and beauty which offers pleasure and peace.
  • I drink lots of water and am mindful of what I eat. There are a lot of toxins, preservatives, and junk food tempting my brain to overindulge. I partake in fruits, vegetables, lean meats, healthy grains, and nuts. It takes will power to resist the urge for a cookie. (Okay, maybe an occasional ice cream cone is deserving!)
  • I found yoga, or I should say yoga found me. Whether 10 minutes or 60 minutes, a daily practice helps me be in the moment, and the stretches and shapes my body creates release tension. I have come to learn its many benefits on the mind, the inner awakening of my spirit, and its peaceful effects that I carry with me throughout the day.

The journey of parenting two children with disabilities is enriched when self-care is on my ‘to do’ list. My health and happiness have become positive enforcers of a life I choose to lead and a life I want my children to have. I parent more effectively. I love more intently. I appreciate more often. I feel a certain freedom in my heart, a burden lifted from my shoulders, and a knowing that things turn out better for my children when I give myself permission to take a time out.

[1] Murphy, Christian, Caplin, Young, The health of caregivers for children with disabilities: Caregiver perspectives, Pub Med, 2006.

[2] Partners for A Greater Voice, Inc. Parent Education Survey, 2016

written by Joanne Travers, Founder/Director of Parents for A Greater Voice, Inc.

Information from this article should be cited/referenced as: “Partners for A Greater Voice, Inc. Content derived from Essential Programs to Coach and Empower (2016). Ipswich, Massachusetts U.S.A. www.greatervoice.com”

 

Share

Guide, Encourage, Motivate, Empower

/in /by

Embracing physical, cognitive, and socioemotional growth of children begins by accurately informing parents and cultivating a supportive environment in which the child can learn and grow. Caregiver support, peer support, and community receptivity to the needs of children with hearing differences mean parents and caregivers have the knowledge and confidence necessary to advocate and educate. Virtually everywhere in the world, deafness and disability carry a stigma. This stigma also exists within the family, often causing feelings of denial, shame, guilt, and depression. Parents need to be equipped with the tools necessary for positive parenting and learn how to navigate their world.

To do this effectively, Partners for A Greater Voice (PGV) guides and inspires parents to feel good about themselves and their journey. It takes time to cultivate positive attitude, acceptance of hearing loss, and engagement of parents/caregivers to address barriers within the family and the community. PGV’s Essential Programs to Coach and Empower presents creative ways to gather all available personal resources to affect positive outcomes and wellbeing, and prepares parents and caregivers for their journey to raise their children.

Understanding how to collaborate with family and schools, learning to trust and filter through an enormous array of content, and cultivating parenting strategies can guide parents and caregivers but does not necessarily engage them. It is one thing to say, ‘here’s what you need to do to teach your child to listen with hearing aids’ and then another to say, ‘how do you feel you are best able to communicate with your child’, or ‘what strengths do you possess that can you use when interacting with your child?’. Coaching a parent is not about telling her what to do all the time. It is a process that moves at a rate in which the parent is ready to open her heart and mind. A sense of purpose and meaning creates a platform from which to grow.  Embracing and attuning to the individual needs of parents and caregivers deepens the opportunity to guide, encourage, motivate and empower.

written by Joanne Travers, Founder/Director of Parents for A Greater Voice, Inc.

Information from this article should be cited/referenced as: “Partners for A Greater Voice, Inc. Content derived from Essential Programs to Coach and Empower (2016). Ipswich, Massachusetts U.S.A. www.greatervoice.com”

 

Share

Brief Meditation Exercise

/in /by

A Partners for A Greater Voice parent survey in the U.S.A. reports that parents have high degrees and extremely high degrees of stress in their life when caring for their children with hearing loss (44%). Parents say they have anxiety and feel worried before an IEP meeting, or while dealing with their child’s behavior at home or in school for example. After this simple meditation exercise, parents report they feel more relaxed in body, heart, and mind; reducing stress and anxiety. Research states how mediation reduces high blood pressure, improves clarity of mind, increases creativity, and fosters better decision making.

Begin by taking pause and find a comfortable seat. Close your eyes and focus on the breadth – both inhales and exhales. As you come to an awareness of the breath, mindfully listen and feel the sensation of oxygen moving in and out the nostrils, feel breath fill your lungs. Deepen the inhalations and exhalations, and try to send the breath to lower lobes of the lungs and watch the belly expand. Just like filling a glass with water, use this traditional yogic pranayama technique to calm, and center yourself in stillness. Say to yourself on an exhale, “calm mind, calm mind” and repeat a few times. Then say, “I feel peace in my body” on the next several exhales. Perhaps you say, “I make myself twice as relaxed with every exhale.” Choose any mantra or language that works for you. After 3-5 minutes of mindful breathing, parents report the strength of self-regulation coming forth and are able to return to the task, decision, and needs of their child with more focus.

Balancing mind and body is key to regulating our emotions and calming our fight or flight response. This brief breathing exercise helps stimulate the para-sympathetic system and calm the nervous system.

Share